Developmental Medicine & Child Neurology

Giovanni Baranello, Sabrina Signorini, Francesca Tinelli, Andrea Guzzetta, Emanuela Pagliano, Andrea Rossi, Maria Foscan, Irene Tramacere, Domenico M M Romeo, Daniela Ricci, VFCS Study Group,

European Journal of Ophthalmology

Ilaria Di Maggio, Gianni Virgili, Giovanni Giacomelli, Vittoria Murro, Giovanni Sato, Filippo Amore, Gianfrancesco Maria Villani, Stefania Fortini, Simona Turco, Alfredo Pece, Roberta Rizzo, Alessandro Galan, Lucia Giordani, Dario Pasquale Mucciolo, Laura Nota (2019), “The Veterans Affairs Low-Vision Visual Functioning Questionnaire-48 (VA LV VFQ-48): Performance of the Italian version”, European Journal of Ophthalmology, doi: 10.1177/1120672119852016

Videochat con l’oculista

Il 13 giugno il prof. Teresio Avitabile ha parlato di distacco di vitreo, fosfeni e corpi mobili durante la diretta Facebook della IAPB Italia onlus

prof._teresio_avitabile_intervistato_da_livia_azzariti-13_giugno_2019-600_pixel.jpgAccendiamo i riflettori sulla salute visiva. Una serie di temi a carattere oftalmico sono stati trattati durante la videochat dall’Agenzia internazionale per la prevenzione della cecitĂ -IAPB Italia onlus.

Sono stati invitati a parlare una serie di specialisti di alto profilo. L’ultima intervista è stata quella di giovedĂŹ 13 giugno al prof. Teresio Avitabile – Direttore della Clinica Oculistica dell’UniversitĂ  di Catania, ordinario di oculistica e Segretario SOI – che ha parlato di “Distacco di vitreo, fosfeni e corpi mobili”, ossia dei vari problemi generati dal “gel” contenuto nei nostri occhi: ai rischi di una sua trazione sulla retina (con annessi flash luminosi) e alle sue impuritĂ  (filamenti semitrasparenti, puntini piĂš scuri e “ragnatele”, chiamati tecnicamente “miodesopsie”, che possono dare fastidio alla nostra visione).

A condurre le videochat con l’oculista è sempre stata la giornalista Livia Azzariti, uno dei volti piĂš noti della RAI nel campo dell’informazione medico-scientifica… (Leggi tutto)

SOI, Congresso internazionale a Roma

Si è svolto alla Nuvola di Fuksas dal 22 al 25 maggio, con simposi della IAPB Italia onlus e del Polo Nazionale dedicati rispettivamente alla prevenzione in gravidanza e all’ipovisione in Italia

nuvola-edificio_esterno-web.jpgLa celebre Nuvola di Roma Eur è stata per la prima volta lo scenario in cui si è tenuto, dal 22 al 25 maggio 2019, il maggiore evento di oculistica del nostro Paese: il 17° Congresso internazionale della Società Oftalmologica Italiana (SOI), organizzazione di cui quest’anno ricorre il 150° anniversario.

Tra gli eventi piĂš significativi ricordiamo la chirurgia in diretta (Live Surgery) e una disamina delle principali patologie oculari, accanto ad appuntamenti come “Back to the Future: i giovani oculisti italiani ripercorrono la storia dell’oftalmologia fino alle piĂš recenti innovazioni”. La cataratta e la chirurgia refrattiva hanno ricevuto…

(Leggi tutto…)

Al Gemelli nasce un ambulatorio per l’adroterapia

Per i melanomi oculari si potrĂ  far ricorso piĂš facilmente a protoni e ioni carbonio grazie a un accordo del Policlinico col Centro Nazionale di Adroterapia Oncologica di Pavia

Melanoma coroideale
Melanoma coroideale
Ci sono tumori non operabili e resistenti alla radioterapia ai raggi X. Per questo è stata ideata l’adroterapia, che sfrutta i protoni e gli ioni carbonio come se fossero dei piccolissimi “proiettili” per “uccidere” i tumori, compresi i melanomi oculari, con maggiore risparmio dei tessuti sani circostanti e una riduzione notevole degli effetti collaterali.

Al Policlinico Gemelli di Roma aprirĂ  entro giugno 2019 un ambulatorio – denominato “CNAO-Gemelli ART” (Advanced Radiation Therapy) – dedicato proprio a persone colpite da forme tumorali particolarmente aggressive. Ciò è possibile grazie a un accordo di collaborazione stipulato col Centro Nazionale di Adroterapia Oncologica di Pavia, uno dei sei al mondo in grado di erogare un trattamento all’avanguardia (gli altri si trovano in Germania, Austria, Giappone e Cina), il cui impiego deriva dalla fisica delle alte energie che studia l’universo.

Un’alleanza Roma-Pavia

L’équipe medica valuterà i pazienti affetti da tumori e, nei casi selezionati, verrà erogata direttamente a Pavia. I medici del CNAO e del Policlinico Gemelli potranno seguire insieme il percorso dei pazienti e condividere le informazioni cliniche.

Marco Elefanti, Direttore Generale del Policlinico Universitario A. Gemelli IRCCS, ha spiegato:

L’ambulatorio CNAO-Gemelli ART ci consentirà di offrire ai nostri pazienti oncologici, che in circa 50.000 l’anno si rivolgono alle cure dei nostri sanitari, tutta la gamma dei trattamenti oncologici più avanzati al fine di realizzare una personalizzazione della cure basata sulle necessità del singolo paziente.

Gianluca Vago, presidente del CNAO, ha spiegato che ciò “contribuirà in maniera significativa a una corretta selezione dei pazienti e ad una migliore conoscenza di questo tipo di trattamento, che ad oggi è stato utilizzato su più di 2200 pazienti affetti da tumori rari. La stretta collaborazione con il Policlinico Universitario A. Gemelli IRCCS favorirà inoltre l’attività di ricerca clinica per consolidare le evidenze scientifiche di efficacia dell’adroterapia nell’interesse delle persone in cura”.

Quali sono i tumori trattabili con adroterapia

In conclusione il Gemelli ricorda che i tumori trattabili con l’adroterapia al CNAO sono quelli non operabili e resistenti alla radioterapia tradizionale: cordomi e condrosarcomi della base del cranio e del rachide; tumori del tronco encefalico e del midollo spinale; sarcomi del distretto cervico-cefalico, paraspinali, retroperitoneali e pelvici; sarcomi delle estremità resistenti alla radioterapia tradizionale (osteosarcoma, condrosarcoma); meningiomi intracranici in sedi critiche (stretta adiacenza alle vie ottiche e al tronco encefalico); tumori orbitari e periorbitari (ad esempio seni paranasali), incluso il melanoma oculare; carcinoma adenoideo-cistico delle ghiandole salivari; tumori solidi pediatrici; tumori in pazienti affetti da sindromi genetiche e malattie del collageno associate ad un’aumentata radiosensibilità; in conclusione sono trattabili persino recidive che richiedono un nuovo trattamento di un’area già precedentemente sottoposta a radioterapia.

Fonte principale: Policlinico A. Gemelli

Come impariamo a vedere

La valutazione e la riabilitazione neurovisiva precoce: il 5 e il 6 aprile a Roma un corso d’aggiornamento per specialisti

locandina-corso-2019-400pix-polo-iapb_italia-ok.jpgCome s’impara a vedere? Il senso che ci fornisce circa l’80% delle informazioni sul mondo circostante ha una sua evoluzione centrale nella vita degli esseri umani. Proprio sulla visione e il suo sviluppo si è tenuto a Roma, il 5 e il 6 aprile 2019, un corso d’aggiornamento rivolto a una serie di figure professionali: dagli oculisti ai pediatri, passando per infermieri, educatori, fisioterapisti, logopedisti, neuropsichiatri infantili, ortottisti, psicoterapeuti e terapisti della neuropsicomotricità dell’età evolutiva.

Il corso – organizzato dalla IAPB Italia onlus e dal suo Polo Nazionale per la Riabilitazione Visiva del Gemelli (Centro di collaborazione OMS) – è stato tenuto da diversi docenti [[tra cui un medico oculista, tre ortottisti, una neuropsichiatra infantile e una terapista della neuro e psicomotricitĂ  dell’etĂ  evolutiva]].

Nel programma si legge:
L’interesse per lo sviluppo delle competenze visive precoci è aumentato negli ultimi anni perché si è compresa l’influenza della vista sullo sviluppo psicomotorio e sociale del bambino. È inoltre ormai largamente riconosciuto che il deficit visivo non dipende solo da alterazioni oculari, ma che è presente nella maggior parte dei bambini con deficit motori. Nonostante le metodiche di valutazione delle funzioni visive siano conosciute ormai da più di 30 anni, pochi sono i Centri che eseguono questi esami e la riabilitazione del bambino rimane prevalentemente basata sulla valutazione delle competenze motorie, senza capire quanto e come quel bambino vede.

Dei cinque sensi però, la vista fornisce la maggiore percentuale di informazioni; è costituita da tanti aspetti, che dipendono da aree cerebrali diverse, che compaiono e maturano in tempi diversi e che, tutti insieme, costruiscono le informazioni che ci permettono di decodificare le immagini. Questo corso ha l’obiettivo di ampliare le conoscenze dei partecipanti sullo sviluppo delle funzioni visive precoci, fornire strumenti di uso pratico ed immediato per valutare tali competenze e integrare, nel percorso riabilitativo, attività che possano favorire lo sviluppo e l’uso della vista.

Link utile: Fabiano Gruppo Editoriale

Glaucoma, una settimana che guarda alla prevenzione

Migliaia di visite oculistiche gratuite: l’iniziativa è promossa dalla IAPB Italia assieme alla SocietĂ  Oftalmologica Italiana e alla SocietĂ  Italiana Glaucoma

cop-settimanaglaucoma-680pix.jpg

Distrugge la vista senza pietĂ  quando non viene curato in tempo: è il glaucoma, che “corrode” silenziosamente il campo visivo a partire dalla sua periferia. Ecco perchĂŠ è fondamentale prevenire i danni di questa malattia oculare: un’occasione preziosa per farlo è stata la settimana mondiale del glaucoma che si è celebrata dal 10 al 16 marzo 2019 con l’Agenzia Internazionale per la Prevenzione della cecitĂ -IAPB Italia onlus, la SocietĂ  Oftalmologica Italiana (SOI) e la SocietĂ  Italiana Glaucoma (SIGLA). Anche il Policlinico A. Gemelli ha aderito all’iniziativa il 15 marzo con un Open Day. (Leggi tutto)

Privacy & Cookies Policy

PRIVACY POLICY PURSUANT TO APPLICABLE LEGISLATION ON PERSONAL DATA PROTECTION

International Agency for the Prevention of Blindness-IAPB Italy – www.iapb.it

IAPB Italy, with its registered office in Via U. Biancamano 25 – 00185 Rome (hereinafter, “Controller”), as data controller, informs you – pursuant to art. 13 D.Lgs. 30.6.2003, no. 196 (hereinafter, “Data Protection Code“) and art. 13 EU Regulation no. 2016/679 (hereinafter, “GDPR“) – that your data will be processed in the described manner and for the following purposes:

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The Controller collects and processes personal data (such as name, surname, address, telephone number, e-mail, bank and payment details) – hereinafter, “personal data” or even “data” – which you have provided at the time of registering to the Controller’s site or subscribing to any of its services.

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Your personal data are processed:

2.A) without your express consent art. 24 lett. a), b), c) of the Data Protection Code and art. 6 lett. b), e) of [GDPR] for the following Service Purposes: the Company processes the personal data provided by you or already in its possession, to finalise, manage and perform the activity requested by you. For instance: participation in the Forum “Ask the ophthalmologist”, phone calls to our toll-free number 800-068506 [available from Italy only, otherwise call + 39 06 36004929 from abroad], participation in development projects and/or mini-projects, donations, legacies, devolution of the 5xmille to IAPB with your tax return;

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The processing of your personal data is carried out by means of the operations indicated in art. 4 of the Data Protection Code and art.4 no. 2) of GDPR and more precisely: collection, registration, organization, storage, consultation, processing, modification, selection, extraction, comparison, usage, interconnection, blocking, communication, cancellation and destruction of data. Your personal data is subjected to both paper based and electronic and/or automated processing.

The Data Controller will process personal data for the time necessary to fulfill the aforementioned purposes and in any case for no more than 10 years from the termination of the Service Finality relationship and for no more than 6 years from the collection of data for Marketing Purposes.

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Your data may be made accessible for the purposes referred to in art. 2.A and art. 2.B to anybody who, within the Company, and within parent companies, affiliated companies or subsidiaries of IAPB Italy, need them in consequence of their tasks or company role. These subjects, whose number will be as limited as possible, will be appropriately trained in order to avoid losses, destruction, unauthorized access or unauthorized processing of the data.

Furthermore, data may be disclosed to: (i) institutions, authorities, public bodies for their institutional purposes; (ii) professionals, independent collaborators, also in associated form; third parties and suppliers used by the Controller for the provision of services of a commercial, professional and technical nature, which may be useful to the management of the Site and related functionalities (eg. IT service providers and Cloud Computing), to the pursuit of the purposes specified above and the services requested by the user; (iii) third parties in the case of mergers, acquisitions, sale of company or business units, audits or other extraordinary transactions; (iv) the corporate SB [[Supervisory Body]], domiciled with the Controller, for the pursuit of its supervisory activities and the implementation of the IAPB Italy Code of Conduct. These subjects will only receive the data necessary for the relevant functions and will undertake to use them only for the purposes indicated above and to treat them in compliance with the applicable privacy legislation. The data can also be communicated to the legitimate recipients according to the applicable legislation. With the exception of the aforementioned, the data is not shared with third parties, natural or legal persons, who do not perform any commercial, professional or technical function for the Controller and will not be disclosed. The subjects who receive the data treat it as Controllers, Managers or subjects authorized to process it, depending on the case, for the purposes indicated above and in compliance with the applicable law on privacy.

Regarding the possible transfer of data to Third Countries, including countries that may not guarantee the same level of protection as the applicable legislation, the Data Controller declares that the processing will take place according to one of the methods allowed by the Regulation, such as for example the user’s consent, the adoption of Standard Clauses approved by the European Commission, the selection of subjects belonging to international programs for free circulation of data, (eg. EU-USA Privacy Shield) or operating in countries considered safe by the European Commission.

5. WHO WILL YOUR PERSONAL DATA BE SHARED WITH?

Without the need for express consent ex art. 24 lett. a), b), d) of the Data Protection Code and art. 6 lett. b) and c) of [GDPR], the Data Controller may share your data for the purposes referred to in art. 2.A to companies providing IT and archival services, or other technical/organizational services as well as to those subjects to whom the communication is mandatory by law for the accomplishment of said purposes. These subjects will process the data in their capacity as independent data controllers. Your information will not be disseminated.

6. HOW DO WE STORE YOUR PERSONAL DATA?

Personal data is stored on servers located within the European Union. In any case, it is understood that the Data Controller, if necessary, will have the right to move the servers even outside the EU. In this case, the Data Controller hereby ensures that the transfer of data outside the EU will take place in accordance with the applicable legal provisions, subject to the stipulation of the standard contractual clauses provided by the European Commission.

7. WHY DO WE COLLECT YOUR PERSONAL DATA AND WHAT HAPPENS IF YOU REFUSE TO PROVIDE IT?

The provision of data for the purposes referred to in art. 2.A is mandatory. In their absence, we can not guarantee the services listed in art. 2.A.
The provision of data for the purposes referred to in art. 2.B is optional. You can therefore decide not to provide any data or to subsequently deny the possibility to process data already given: in this case, you will not be able to receive newsletters, commercial and promotional communications concerning the Services offered by the Data Controller. However, you will continue to be entitled to the Services referred to in art. 2.A.

8. WHAT ARE YOUR RIGHTS?

In your capacity as an interested party, you have the rights set forth in art. 7 of the Data Protection Code and art. 15 of GDPR. Precisely, you have the right to:

i. obtain confirmation of the existence or not of personal data concerning you, even if not yet registered, and their communication in an intelligible form;

ii. obtain the indication: a) of the origin of personal data; b) of the purposes and methods of the processing; c) of the logic applied in case of processing carried out with the aid of electronic instruments; d) of the identification details of the controller, the managers and the designated representative pursuant to art. 5, paragraph 2 of the Data Protection Code and art. 3, paragraph 1, of GDPR; e) of the subjects or categories of subjects to whom the personal data may be shared with or who may become aware of it as a designated representative in the territory of the State, of managers or agents;

iii. obtain: a) the update, rectification or, when you have an interest in it, integration of data; b) the cancellation, transformation into anonymous form or blocking of data processed unlawfully, including data whose retention is unnecessary for the purposes for which the data was collected or subsequently processed; c) the attestation that the operations referred to in letters a) and b) have been brought to the attention, also as regards to their content, of those subjects with whom the data has been shared or disseminated, except in the case where this proves to be impossible or involves a use of means manifestly disproportionate to the protected right;

iv. to object, in whole or in part: a) for legitimate reasons, to the processing of personal data concerning you, even if pertinent to the purpose of the collection; b) to the processing of personal data concerning you for the purpose of sending advertising or direct sales material or for carrying out market research or commercial communication, through the use of automated call systems without the intervention of an operator by e-mail and/or through traditional marketing methods by telephone and/or paper mail. It should be noted that the right of opposition of the interested party, set out in point b) above, for direct marketing purposes through automated methods extends to traditional ones and that in any case the possibility remains for the data subject to exercise the right of opposition also only partially. Therefore, the interested party can decide to receive only communications using traditional methods or only automated communications or none of the two types of communication.

Where applicable, the data subject also has the rights referred to in Articles 16-21 of GDPR (right of rectification, right to be forgotten, right of limitation of treatment, right to data portability, right of opposition), as well as the right of complaint to the Guarantor Authority.

9. HOW CAN YOU EXERCISE YOUR RIGHTS?

You can exercise your rights at any point by getting in touch with us:

➢ by email: sezione.italiana@iapb.it
➢ by post: IAPB Italia onlus – Via U. Biancamano, 25 – 00185 Rome, Italy
➢ by phone: +39 06 36004929 (fax 06 36086880)

10. DATA CONTROLLER AND DATA PROCESSORS

The Data Controller is IAPB Italy, with its registered office in Via U. Biancamano, 25 – 00185 Rome, Italy;
the updated list of data processors is kept at the Data Controller’s headquarters.

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8. On the basis of what was written by the Italian Privacy Authority in the “Guidelines on the processing of personal data for the purpose of publication and dissemination in websites exclusively dedicated to health” [Published in the Italian Official Gazette no. 42, February 20, 2012]], the International Agency for the Prevention of Blindness-IAPB Italy draws the attention of the user to the risk that by entering sensitive data linked to identifying data on this website, they can be identified with their own specific pathology. This warning is also intended to indicate the necessary measures to protect one’s own and others’ privacy in the [forum of the www.iapb.it website. Therefore the International Agency for the prevention of Blindness-IAPB Italy specifies the following:

a) the name and surname are not requested during the registration procedure: it is possible to maintain anonymity by simply using a nickname as a username, which prevents personal identity from being traced;
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I) reflect on the opportunity to insert, or not, personal data (including the e-mail address) that can reveal, even indirectly, their identity. Consider, for instance, the case in which the user, in detailing their own experience or describing their state of health, includes references to places, people, circumstances and contexts that also indirectly allow their identity to be traced;
II) pay particular attention to the possibility of inserting, in their own interventions (posted on the various areas dedicated to health), data that can also indirectly reveal the identity of third parties such as, for instance, other people who share the same pathology, human experience or medical path of the post’s author;
III) be fully aware that the text published in the forum of this website (i.e. what is posted) is automatically indexed by Google and other search engines. Therefore, if you do not want this to occur, you can use the same service of ophthalmological consultation by sending your request exclusively by e-mail to info@iapb.it. This way, the International Agency for the Prevention of Blindness-IAPB Italy gives the user the full right to opt between a confidential request (strictly personal) and a request which will be published on the forum and that can be consulted by everybody.